Browsing: rare disease awareness

Health

Hope in the Blood: What Sickle Cell Can Teach Ghana About Rare Disease Innovation

By 16

In Ghana, thousands of children live with mysterious, undiagnosed illnesses that doctors cannot name. “The Long Road to a Name” investigates the country’s hidden crisis of rare diseases — revealing the emotional struggles of families, gaps in diagnosis, and the urgent need for genetic screening and policy reform to give these children a chance at life.